Author Topic: Please Pray For My Nephew (Read 122431 times)

gg · « **Reply #1335 on:** July 07, 2005, 10:05:49 AM »

I did find that amazing about Sarah's mom - to be honest I hope when things become more difficult to do I have that gumption.

Mom doesn't know what happens when she falls - blackout, faint, trip (not likely). Unfortunately each time she falls she loses ground in strength and mental abilities. In April I got really scared as she had 2 falls & 3 times needed help getting up from a chair (she waited for her home care worker to come). I contacted the home care coordinator, told her things were getting a lot worse & what could we do for her. We already had her on a waiting list for a Personal Care Home but had a wait of another 9 months at least. Joan found one that took her within the week. It's a 1/2 hr. drive, but now her care is 24/7& we are waiting for an opening in our area. A week after she was placed she had 3 falls on mother's day and 1 the following day. On that one she broke her hip and needed a hip replacement. She's now in a wheelchair & they are doing some physical therapy but it's not likely that she'll be walking again. I'm finding this extremely difficult emotionally & use all my energy to function as normally as possible. I have to block out the thought "this could be me in 20-30yrs".
Whew didn't mean to say so much.

About Daniel & the races - they could check it out with the Dr., perhaps he could wear a mask? Sure is hard when a deserving young person wants something so badly & you can't give it to them isn't it?

williamsonmunier · « **Reply #1336 on:** July 07, 2005, 11:56:26 AM »

We're here, Carolyn, and we understand. Check your IM.

Sarah

csc · « **Reply #1337 on:** July 08, 2005, 06:55:30 AM »

Sarah, received the IM, thanks so much! I appreciate all you share about your experiences with your Mom. It means a lot to hear my friends' stories--helps me deal with my own things here.

Gail, I am sincerely sorry to learn your Mom has all this going on. Thank goodness she was able to get into this care place. Believe me, I understand what you mean about finding this extremely difficult emotionally & using all your energy to function.... I'm glad you shared all this with me. You will sure be in my prayers and thoughts. Going through all these things with our parents does open our eyes to what may be in store for us. There has been so much , my Dad, all Sarah has told us, yours and Pam's and then others on here that we have been hearing about lately. It is such a helpless feeling to know we can't make everything alright.

Daniel had an afternoon full of therapy yesterday. They're concerned about his lack of muscle strength in his hips. This of course gives him the strength, or lack of, to stand, walk, get up and down on his own. I don't know what they intend to do, but I pray it gets better. I'll have to try to find out more detail. We did get to talk to him before he left for the afternoon and while he knew he needed to go, he was also dreading the pain that would come with it. I'm sure he had stiffened up some too after not having the regular therapy for 2 weeks while all was being set up.

Carolyn C

csc · « **Reply #1338 on:** July 10, 2005, 09:31:18 PM »

Daniel got to go visiting Sat. again. His Mom got the wheelchair out of the back of her Jeep and started around to put it by the door for Daniel. She was
shocked to see him standing there leaning against the Jeep.
He had already gotten out on his own and then sat down in his chair without much help.

He wants to do every thing that he possibly can on his own, which is good because it means he is trying so hard and not giving up. I often wonder if it were me, if I could have so much courage and determination.

Daniel said to be sure and tell you all hi!!

Carolyn C

Jan · « **Reply #1339 on:** July 10, 2005, 09:56:16 PM »

Carolyn, Be sure to Daniel Hi back. It is good that he is still trying so hard. He will do a lot more I am sure in a very short time...Jan

Lynn · « **Reply #1340 on:** July 10, 2005, 09:58:45 PM »

Carolyn, tell Daniel we're really proud of him. Everything he can accomplish on his own brings him that much closer to independence.

Lynn

mingy · « **Reply #1341 on:** July 10, 2005, 10:04:06 PM »

You tell Daniel we are all still thinking of him. He is doing great and I know he will continue to make progress.

williamsonmunier · « **Reply #1342 on:** July 10, 2005, 10:36:11 PM »

Carolyn, it's obvious that Daniel has the qualities that will bring him through this time--determination and motivation mean oh so much.

Tell him hi from me too! We all are indeed proud of him!

Sandy · « **Reply #1343 on:** July 11, 2005, 08:00:11 PM »

i ditto the hi. be sure daniel knows how proud we are of him; he's still in our prayers.

csc · « **Reply #1344 on:** July 12, 2005, 10:13:41 PM »

I sure love to hear that prayers are still going out for Daniel. He's come so far, but he still has so far to go to become independent again. His therapy sounds great from what I am learning. It is very painful for him and I feel that hurt right along with him.

When I called today katie was making lunch and Daniel had a visitor there from his church. Then he was scheduled for therapy, so I didn't get to talk to him. Tonight I gave it a try, but, no answer. I think Tuesday is dog club night for them. Just knowing he is happy and keeping busy with good things makes me happy and feel better. I'm hoping to get to see him later in the week and will see if he wants to spend the day Saturday.

Sorry about not posting sooner, but I got too much sun from working out in the yard and became really sick. I think it's time to rest up some again.

Hey, thanks again!!

Carolyn C

csc · « **Reply #1345 on:** July 12, 2005, 10:16:44 PM »

I forgot to say that I will tell him hi from all of you and deliver messages! That's always a bright spot in his day when I tell him!

Carolyn C

Lynn · « **Reply #1346 on:** July 12, 2005, 10:36:09 PM »

Thanks for keeping us posted, Carolyn. Now you behave yourself!!!

Lynn

mingy · « **Reply #1347 on:** July 13, 2005, 09:40:37 AM »

Thank you Carolyn. Take care of yourself. Glad to hear that therapy is going well for Daniel. We miss those daily postings but realize that there is less to tell us now. That is really good though and something to rejoice over.

Sandy · « **Reply #1348 on:** July 13, 2005, 09:43:25 AM »

carolyn, it sounds like daniel is doing fine and keeping busy, that's good. now, take care of yourself.

csc · « **Reply #1349 on:** July 14, 2005, 01:14:07 AM »

Daniel sure is keeping busy! I didn't talk to him today at all. If I call and find out he has visitors, I just tell Katie or who ever answers to tell him hi and we love him and will talk to him later. At least he knows we call.

There really isn't a lot of updates right now, but as you said, that's ok and we know he is making steady progress. Thanks to God for that too!

I'm behaving, have to!

I'll update more later, just wanted to check in with you because I so appreciate you being here for me/us!

Thanks!!
Carolyn C